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Midwest Rett Syndrome Foundation

Fully committed to improving the lives of all who live with Rett Syndrome

University of Minnesota Rett Syndrome

Sleep Study

Goals: The purpose of this study is to examine sleep and wake cycles among individuals with Rett and related syndromes to identify patterns of sleep dysfunction. Understanding sleep patterns in this population may provide insights into how the body is working, and provide targets for future treatments.

Procedures: This study involves examining your child’s sleep patterns using a motion sensor that he/she would wear on his/her wrist (like a watch) or ankle for up to a week. The sensor is small and non-invasive, and should not interfere with your child’s day-to-day activities. We would send the device to you and ask you to have your child wear it throughout the day and night for several days. At the end of the period, you would send it back to us, and the information will be downloaded to a computer and analyzed to see how long it took for your child to fall asleep, how long they slept, and how frequently they woke up during the night. We will also provide a form for you to record when your child went to bed and when he/she got up in the morning.

Criteria: All ages, ability levels, and diagnoses (Classic, atypical Rett syndrome, MECP2 duplication syndrome) welcome to participate.

If you are interested in participating, please contact Breanne Byiers, the project coordinator, at 612-626-7110 or byier001@umn.edu.