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Midwest Rett Syndrome Foundation

Fully committed to improving the lives of all who live with Rett Syndrome

IRSF Regional Representative Program

The International Rett Syndrome Research Foundation Regional Representative Program has been established to provide emotional support, information and resources to families affected by Rett syndrome. It is used as a vehicle to promote family gatherings and fundraisers to support IRSF’s mission. It is an integral part of IRSF.

Mission Statement
The Regional Representative program strives to provide supportive local contacts for families affected by Rett syndrome, promote public awareness and knowledge of RTT and IRSF, support fundraising efforts that will promote research towards finding a cure for RTT and connect families through gatherings and outreach. 


Minnesota's Regional Representative - TBA

For more information about the program please contact Jennifer Endres at jendres@rettsyndrome.org or by calling 508-362-2220.