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Midwest Rett Syndrome Foundation

Fully committed to improving the lives of all who live with Rett Syndrome

University of Minnesota Rett Syndrome

Communication in School Study

Goals: The goal of this study is to understand how school personnel and other professionals who work with children and adolescents with Rett syndrome interepret their communicative behaviors. This information may be helpful in developing training materials for teachers, educational assistants, and others working in school settings on how to facilitate communication for individuals with Rett syndrome and other disabilities.

Procedures: First, the parents or guardians of the individual with Rett syndrome will be interviewed about their child’s communicative behaviors. The research team will conduct some assessments to get additional information about the individual’s communication, and to get brief video clips of some communicative behaviors. These clips will then be shown to the individual’s teachers, educational assistants, and any other professionals who work with her on a regular basis to assess whether they can identify how and what the individual is communicating.

Individuals receiving school-based services (early intervention through age 21), who are not currently using a formal communication system (e.g., eye gaze communication device) are welcome to participate.

If you are interested in participating, please contact Breanne Byiers, the project coordinator, at 612-626-7110 or byier001@umn.edu.